Cancer Registry Bill FAQs

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What is the purpose of the proposed Cancer Registry Bill and what is the information used for?

The Bill aims to collect information on the incidence of cancers and brain tumours. This Law will mandate the reporting of cancers and brain tumours by medical providers, which in turn will help ensure that the policymakers and people of the Cayman Islands have access to timely and accurate information relating to the incidence of cancer.

 

Does the proposed Law safeguard the privacy of cancer patients when data is submitted to the Cancer Registry?

Yes. The Law includes provisions to ensure that all data received by the Cancer Registry is confidential. Any data released or disclosed would be aggregate information which will be used solely for statistical purposes.  Under no circumstances will information (including names or other identifying records) ever be shared with outside parties. A fine of $10,000 will be imposed if a person is convicted for disclosing data without necessary authority.

 

Who is responsible for reporting cancer and brain tumour cases to the Cancer Registry?

The medical providers (doctor, dentist, healthcare facility or examiner) who ordered a test that confirms the presence of cancer or a brain tumour will be required to report any cancers and brain tumour cases to the Cancer Registry no later than 45 days after receiving confirmation. For persons who are deceased and a post mortem examination indicates the presence of cancer, the examiner must make a report to the Registry.

 

What is the format of reporting cancer cases?

The required report may be submitted in writing in an electronic form or by direct input into a database maintained by the Registrar. Schedule 2 of the Cancer Registry Bill, 2015, outlines the information that should be submitted.

 

Is it an offence not to report known cancer cases to the Cancer Registry?

Yes. The Law allows for imposing a fine of $1,000 if a person is convicted of failing to report tests where it confirms the presence of cancer or a brain tumour, or failing to provide the specified data after receiving a notice in writing from the Registrar.

 

Can the Registrar request further information once a case has been reported?

Yes.  This can be done where the report submitted is incomplete.

 

Who will have oversight of the process?

The Cancer Registry Board will oversee the operations of the Registry.  The Board is also responsible for submitting annual reports and making recommendations to the Minister of Health on any activities of the Registry including any trends or findings about cancer and brain tumours in the Cayman Islands.